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Supplementary materials: What works when: mapping patient and stakeholder engagement methods along the ten-step continuum framework

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posted on 2024-01-03, 12:30 authored by Hillary A Edwards, Jennifer Huang, Liz Jansky, C. Daniel Mullins

These are peer-reviewed supplementary tables for the article 'What works when: mapping patient and stakeholder engagement methods along the ten-step continuum framework' published in the Journal of Comparative Effectiveness Research.

  • Supplemental Table A. CINAHL® (Cumulative Index of Nursing and Allied Health) Database Search String
  • Supplemental Table B. Patient Participant Counts for Game Board Responses
  • Supplemental Table C. Researcher Participant Counts for Game Board Responses
  • Supplemental Table D. Other Stakeholder Participant Counts for Game Board Responses
  • Supplemental Table E. Qualitative Summary – Concepts by Participant Group

Summary: Aim: This study provides a recommended ‘patient engagement translation table’ that identifies evidence-based methods for meaningful patient engagement along a ten-step framework for continuous engagement. Materials & methods: We used a mixed methods research design to collect data on preferred engagement methods, including an environmental scan of available literature, interviews and focus groups with patient-centered outcomes research stakeholders to match methods with research steps and a modified Delphi process with subject matter experts to create the final translation table. Results: Evidence-based engagement methods included community partnerships, focus groups, interviews, meetings, sharing print materials, social media, storytelling, surveys and including patients as research team members. Conclusion: Our recommended patient engagement translation table is designed to assist investigators in determining appropriate engagement methods for meaningful interactions with stakeholders.

Funding

Patient-Centered Outcomes Research Institute (PCORI) Award (ME-1409-20792)

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